As I finally sit to write a blog update, my house is filled with fun loving teenage boys gathered in our basement to eat food, play pool and watch the Super Bowl! I do love having the house filled with teens, it just makes our often abnormal house feel so normal! 🙂
So we survived our big family ski trip to Vermont! And as a bonus, our school was closed 2 days for winter weather, so I got back 2 of my personal days and the kids did not have as much work to make up.
Our first night of the trip was one of my faves and it set the tone for our vacation! We arrived Sunday evening in snowy Vermont, checked in, and went to the outdoor hot tub! The whole family laughed hysterically as we made our way through the snow in our bare feet to the hot tub. Tyler’s hair froze nicely, as well as Curt’s hair. Actually by the time I headed back to our room my hair was frozen stiff. First time I ever went to blow dry frozen hair! 🙂 And it was during the laughter of the hot tub and the snow I completely FORGOT that we are a family gripped with the horrors of a tough disease. I totally forgot, and was wrapped up in the joy of the moment. 🙂
The next 2 days, Curt and the kids skied, and skied and skied!
And I read and read and read! 🙂 I know I am a bit behind the times, but I started reading “The Shack” while on vacation. Great book so far!
We didn’t ski on Wed. Curt was exhausted from his 2 days of skiing, and the conditions were not that great either. So we totally chilled in the hotel room, and played endless rounds of boggle, ate pizza, and the kids drove us crazy! But they really had fun together, and enjoyed hanging with each other……..so I cherished the moment…..despite the fact that they sure were obnoxious! 🙂
Thursday the kids were back skiing, Curt and I chilled at the lodge. Curt did GREAT his two days of skiing, but he does get so much more tired these days, and as most men with or with out Alzheimer’s think, they can do things just as they did 20 years ago! Needless to say he did not ski on Thursday morning. So we headed home on Thursday afternoon, and thanks to God Almighty, not my expert driving, we made it home safely! I have been so spoiled for years, Curt has driven on all the long trips while I sit and read. Not this trip, I had to drive, so I am thankful for a safe drive to Vt. and home. Although I must add that Tyler drove for about 2 hours on the trip up to Vt………nice to have another driver!
Thanks to so many of you who prayed for our special family trip!! We are so thankful for the fun memories!
On the Alzheimer’s front………………………
When I returned to school on Friday I received an email from the Dr. who treated Curt at Johns Hopkins. Here is a copy of what he said;
“Curt has 1 ApoE3 and 1 ApoE4 allele. The presence of the E4 allele makes it unlikely he’ll respond to the Axona. It also significantly raises the probability he has Alzheimer’s disease as opposed to some other form of dementia. And yes, it really is unusual, but not unheard of at this age; I really sympathize with you having to deal with this terrible life-changing problem. In some respects the caregivers suffer more than the patient.”
So it means, that Curt would not benefit from the one newer medical food that they had considered for him…..ugh!
So we will keep pressing on, living daily with evidence of how this disease permeates our every day lives. Yet we strive to keep on, pressing on!
Philippians 3:14 ~ I press on toward the goal to win the prize for which God has called me heavenward in Christ Jesus~