People often ask me how did I know something was wrong on with Curt. Alzheimer’s is so unusual in the way it affects people. Each one is so different! And Curt being so young, obviously the last thing we thought was going on was Alzheimer’s!!
Curt started complaining 3-4 years about “losing it!” I of course figured it was the busy and over 40 brain kicking in. He was always pretty disorganized, so I just figured it was the combination of that and getting older. He of course insisted there was more to it than that, and I as any good, busy wife does, really didn’t listen to well to his complaints about memory! 🙂
But about 2 years ago we both noticed it had gotten worse. And he talked to his primary care dr. At that point he was up sleepwalking a lot at night with no recollection of any of it the next day, becoming more disorganized, having trouble keeping track of appointments and the details of what was happening through out a busy week. I also noticed he was having trouble driving somewhere new and unfamiliar, and he was having great difficulty with things like putting the tent up when we went camping, or simple fix it jobs around the house. He was also reluctant to try a new skills.
He talked to his Dr. and they agreed to a sleep study, ( since my sweetie is a snorer!!). Sometimes memory loss issues can be caused by simple lack of sleep…..seemed to make sense to me. But deep down at that point I thought there seemed to be more to it than just short term memory problems.
He had the sleep study done and he was shown to have sleep apnea so he started with the good ole C-Pap machine, and I was happy to now be sleeping with Darth Vader each night. Shortly after starting with the C-Pap the short term memory issues did get better…….HOWEVER, I was also starting to see other more disturbing symptoms.
He called me one night late in Feb. of this year on his cell phone asking me how to turn off the bright lights on the van. He was complaining that he rarely drives this car and couldn’t figure it out. Problem is, the brights turn off the exact same way as the car he is used to driving!
He was also having trouble parking the same van in a parking spot. It was always crooked, and not positioned well. In addition he had great trouble parallel parking a car, a skill he had always done with exact precision. I began to notice spatial concepts were difficult for him.
Then this past summer, things became more apparent there was something wrong.
And there is where I will have to stop for now…..I am off to school for the day. More to come later…….
Thanks again for praying for ALL of us!!
Keep praying as Curt adjusts to being home….most days are good and busy, but there are those moments when he seems a bit depressed by everything. Which is understandable.
Also please pray for wisdom with ALL the decisions for the future that need to be made.
I love this picture, it’s a reflection of our busy life…..Curt eating breakfast at a baseball tournament in Omaha, NE this summer! 🙂